.png)
Late Summer 2024 I began experiencing pain nearly every time I ate, as time went on, it morphed into acid like heartburn feeling too. After the year we had in 2023 with Kevin's journey (that also included some major financial things), I assumed due to stress it was an ulcer and tried several natural things to help the acid, which helped temporarily. On 9/11 I finally decided I needed to go to Urgent Care (as I didn't have a GP, due to being generally healthy). I told the PA what was going on and that I thought it may be an ulcer, and that I would like to deal with it as naturally as possible. She felt my stomach (I only had pain when I ate, never on touching), offered an acid blocker med and sent me on my way. When I looked at my chart, she noted "acid reflux" never telling me this or seeking any kind of testing.
6 days later, I woke up in pain, previously I had only had pain on eating. We were headed to a follow up appointment 1 1/2 hours away for Kevin that morning. I was still hurting. We stopped for lunch, which I ate and then immediately didn't feel well and had to run to the restroom and vomited. We had one more stop for an errand, during which I was still feeling miserable, so told Kevin we needed to stop at the ER before we headed home. After labs and a urine test, they said it was gallstones. I asked how as I do not have a gall bladder (something I wish I never would have done), they said stones are still possible. Finally, they did a CT scan, the Dr comes in, sits down and says "I hate having to give news like this. We found a mass on your pancreas and liver". I was in shock and denial. I live a healthy life, I have removed most of the toxins from our home and my personal care. My first thoughts were "I live and eat healthy, use good supplements, there is no way this is what is happening". I spent the next several hours processing this news. Pancreatic cancer is typically terminal because there are no symptoms and by the time it is found, it has spread and is hard to fight.
Relationships are so important in life and this proved it all again. Due to Kevin having walked this journey just a year before (see Post here) and having an incredible Oncology team who gave us their personal cell phone numbers, he was able to text his Dr that evening. Dr was on vacation in Croatia, but responded almost immediately and said "it is cancer until we prove otherwise, we will get her in right away". I received a call at 8am the next morning, scheduling my appointment the following day, 9/19 with labs. We asked the Dr how long she thought I may have had this and her reply was "18 months or more". Which means I actually had it before Kevin was diagnosed with his, without a single symptom. Which just solidified how blessed we were to have just walked this with Kevin in order to get my treatment very quickly.
In order to truly get a diagnosis, I had to get a bunch of testing. On 9/23 I had a PET Scan, on 9/24 I had a ERCP scope/biopsy. During the ERCP/EUS they were unable to get a good enough pancreas biopsy and no liver biopsy at all due to inflammation and bleeding but assumed that liver spot was scar tissue based on what the Dr saw. 9/25 was back to Oncology with more blood work and results of PET (Pancreas lit up, Liver didn't). At this appointment we were told "it is curable with surgery and chemo". On 9/29 I was scheduled for an MRI, after many IV's and people touching, poking and prodding, then being strapped to the table in an extremely narrow MRI tube, I had my first ever panic attack and couldn't complete it. It was rescheduled for 10/1, at a different location, as it was needed to get an accurate idea of the liver involvement, it did indeed show it had spread to the liver, making it stage 4, which changed the prognosis from curable to incurable, but treatable and remission possible within 6 cycles of treatment (essentially 6 months). Next was genetic testing to determine if this was genetic (Pancreatic, Ovarian, Prostate, Breast and Thyroid cancers are in the same genetic line). All of this was so much to process, but our faith is strong and we know God has a plan for everything, even this and we trust His will fully!
On 10/10 I had a port installed and 10/15 started my first chemo infusion. The plan at this time was 3 weeks on 1 week off for treatment with a strong chemo cocktail, but my body had other plans.
I am going to back up just a bit, when Kevin was diagnosed, I did a ton of research on natural ways to treat cancer. So, I knew I was going to take this route, infact we had had a conversation in July, and I said, "If I ever have to deal with this, I will not do chemo". With this diagnosis being Pancreatic cancer, I felt like I had no choice as my children are young adults and I have young grandchildren. I have too much to live for! I decided I was doing both. I started taking Iver mec tin and Fen ben dazole (words intentionally separated to avoid being flaged) as well as some other supplements to support liver and inflammation. I will share my protocol and links to purchase what I have been using below.
Though my health and wellness journey I have learned to advocate for myself and my family. I was very upfront and told the Dr I would be using these, infact started on them immediately and got approval for all my supplements as well. She said, "there isn't enough info, but I know people doing ok with it". Know that many Dr's will have issues with this, but you need to do what is right for you, your family and your situation, even if that means finding a new Dr.
My first infusion was 10/15, I struggled a bit with the Abraxane, they had to stop and give me Benadryl to calm things down, then it was easy going. I had my second infusion 10/22, come 10/29 my Neutrophils and White Blood Cells dropped too low, so they opted to go to 2 weeks on 1 week off. So, I had the week off. On 10/29 I started to lose my hair. This was the hardest thing of all for me. I have been a hairdresser for 26 years and hair is a big deal in my world. On 11/5 I had infusion #3, the following week, my numbers were again too low, so they decided we would do week on, week off.
12/13 I had my first CT scan to check progress - it showed minor shrinkage on a couple of tumors, but was classified as "stable"
There are a couple of very specific blood tests for pancreatic cancer, one called CA19-9. Normal is 35 or under. My first one on 9/19 was 1795, 10/2 was 3014, 10/15 2889, 12/17 136 a 95% decrease and 1/21 59. 2/11 56. I will have another on 4/25 and will update here with those results.
The second is called circulating tumor DNA test. This test is being done for many cancers and is the test used to tell us Kevin was all clear. It is more accurate than a scan as it shows whether or not there is any cancer cells circulating in the blood. My test is called a "Signatera" they type my cancer cells so the test is specific to me and my cancer. This was done 10/15 and was 2.21, on 11/19 was .83 and on 12/31 was ZERO. Just 3 1/2 months since diagnosis.
This was after only 7 infusions, but with all the alternative treatments I have chosen to do.
As of 2/6 I had a PET scan to verify the Signatera results. The results stated "No pathological uptake in the region of the pancreas" which means there is no active cancer cells.
We were both blessed to have minimal side effects due to getting the nutrients our bodies needed through supplementation!
It is our goal in sharing our stories to help people by sharing what has worked for us (and many others as well).
Here is my protocol:
Designer drink first thing (These are ones I sell (Nootropic (brain health), Minerals, Energy all unflavored so can mix into favorite beverage) www.blessednhealthy.com
Around 9:30-10am:
Pectasol C (or MCP) ~ 6/day on empty stomach ~ This is a binder that is important to take when taking FenBen or Iver to carry the dead cells/parasites out of your body.
WITH Food:
FenBen ~ 4/day (M-Sa, ***Must take with fat***) 1332mg total (worked up to this dose) 444mg Increase dose every 7-10 days (Must take a liver support as this can raise liver labs. I use Milk Thistle, linked below) (PM or contact me for another source)
Ivermectin ~ (daily) 72mg (1mg/kg) – worked up to this dose as well. There are many sources of this, most easily you can get it at your local Vet Supply (yes, it is sold for animals) or offshore via alldaychemist.com or righttotry.bz (Contact me for another source)
Atermisinin ~ 1/day (6-12 months) 900mg
Milk Thistle ~ 1/day 111.1mg (with Dandelion 12.5mg) ***Don’t use if cancer is hormone driven. Use Tudca instead.
Black Cumin Seed Oil 1/day 1000mg
Telomere ~ 4/day
Turmeric ~ 1/day
Turkey Tail ~ 6/day
Soursop tincture and have been occasionally drinking the tea
Multi Vitamin and Immune Support patches (as well as other options)
CBD patches as needed
I also have access to Hyperbaric Oxygen Therapy. My goal is 3x per week but haven't been able to get there regularly yet.
A few resources you can do your own research on are below:
Dr. William Makis on X, YouTube and Substack is a great resource for all the success stories with these off label uses.
Joe Tippens is one of the first I had heard of who used these off label meds with great success.
Here are a couple Facebook group I have been following where I have done some research – take it with a grain of salt as EVERYONE has their own opinions and not everything there is positive. (4) Fenbendazole And Other Alternate Choices There are some others I found too, but I like this one the best. Here is another one I use too Fenbendazole - Cancer Support Group
I will continue this protocol for life, just altering some of the doses as a preventative measure.
.jpg)
We just saw this post. We are so very sorry for your cancer diagnosis. We will keep you in our prayers. Steve and Grace
ReplyDelete